Thankfully, the medication review was just in ‘n out again. Nothing’s changing, and all I need to do is have a blood test booked. No biggie.
So, epilepsy.
Shortly after returning to school after the summer holidays in ‘87, I was in a maths class when I felt really strange. The best way I could describe it, at least back then, was a memory blank. I turned to Joanne Kenyon, sitting next to me, and said, “I can’t remember anything!”
She frowned slightly. “What’s your name?”
I blinked. I knew that. “Elaine.”
She shrugged and turned back to her work. I looked down at my exercise book. It could have been in Swahili for all the sense I could make of it. I didn’t know how to describe what was happening, so didn’t say anything. After a minute or so, the feeling passed and my head cleared again.
Over the next few years, I would have the same sort of episode maybe every few months or so. I generally knew if it was going to happen, as I would wake up in the morning and feel ‘fuzzy’. I’d go through the day wanting the memory blank to come and go, just so I’d feel normal again. I remember some instances more clearly than the others.
Lunchtime at school - I hid in one of the toilet cubicles and banged my head with the heel of my hand to try and knock some sense into my brain again.
At the hairdresser’s getting my hair washed - I squeezed my eyes shut and prayed that it would pass before the girl finished, as I didn’t think I’d be able to make my way to any chair she indicated I sit down at.
At home in the living room - I’d mentioned earlier in the evening to Dad that I’d gotten some clothes from a catalogue. He asked to see them just as a memory blank came on. I stalled for time by pretending to finish a chapter in a book, when in reality the words meant absolutely nothing to me.
At home talking to Mum when she had a friend round - I left the room quickly, although I couldn’t be sure whether or not I was in mid-conversation.
I couldn’t express exactly what was happening because I just didn’t know. I was just thankful it passed quickly.
By this time, I’d taken my GCSEs (exams taken at 16), and was just starting sixth form. I remember it was a Monday, and it was September 1991. I was sitting next to a friend, Dawn Harvey, during a study period, when one of the memory blanks came over me. Coincidentally enough, it was in the same room as I’d had the first episode. I sat very still and kept quiet and waited for it to pass. The next thing I knew, I was lying on my back on the cold tiled floor of the room and Mr Turrell, a science teacher, was kneeling beside me.
“Just keep still,” he told me. “How are you feeling?”
My classmates were looking over me, worried. I was extremely confused. “What happened?”
“You started shaking,” said Dawn. “I told you to stop but you didn’t answer, and you fell off the chair.”
After 10 minutes or so, I was helped up by Mr Turrell and guided to sick bay. My Mum arrived around 20 minutes later to take me to Good Hope Hospital. I still felt tired, confused and ill. We’d only just driven out of the school gates when I asked Mum to pull over. I got out of the car quickly and vomited in the gutter. Getting back into the car, nauseated, we carried on to the hospital. After a long wait, I was poked, prodded and questioned by a doctor. They couldn’t find anything particularly wrong with me, and suggested I may have a mild virus.
Three months later, I was in the Great Hall at school during a mass service. The whole of the school could fit in there in tightly packed rows, and we were standing up during the Homily, I think. I came to in the lower girl’s changing rooms with a lump on my head. Apparently, I’d just keeled right over and hit the floor before anyone could catch me. Mr Cox, the RE teacher, had his hand bandaged for a week after that. It wasn’t until a while later that I discovered it was because he’d put his fingers in my mouth to make sure I didn’t swallow my tongue. I’d bitten down hard. Again, I was taken to the hospital. This time, they suggested EEG and CAT scans. By the time they’d been booked for me, I’d blacked out again, this time on the school bus.
All the scans turned out perfectly normal. It took another seizure or two (in the sixth form common room, and at home - where I remember hyperventilating in the bathroom and crying that it wasn’t fair, why me?) before the doctors decided to put me on anti-convulsant medication. I remember crying when Dr Jamieson told me I probably had epilepsy and I would have to take the medication for the foreseeable future. I was 16. It took them a while to get the dosage right, but it works.
I’m luckier than a lot of epileptics. My epilepsy can be mostly controlled by medication, and at a relatively low dose. I don’t get many, if any, side effects from it. Occasional drowsiness and dizziness. I can handle that.
As for technical terms, I know now that the ‘memory blanks’ I used to have (and now that maybe occur once or twice a year) are actually simple partial seizures, and the blackouts are secondary generalised tonic-clonic seizures. I don’t remember anything that happens during the tonic-clonics, but thankfully it’s been many years since I’ve had one. I deal with it, and don’t let it affect my life. It’s just me.